This is a selected list of resources that the AST Pediatric Community of Practitce Joint Transition Work Group considers helpful and user friendly. This resource will be updated regulary.
• An excellent site representing the National Health Care Transition Center
• Geared for health care professionals, families, youth, and health policy makers
• Includes transition tools, tips and other resources in each category
• Regularly updated.
• An excellent comprehensive website, with links to many facets of transition
• Has resources for health care providers including toolkits, guides, a health history summary template that the youth prepares with the assistance of a parent and information regarding special education needs
http://www.sickkids.ca/Good2Go/ and http://www.sickkids.on.ca/myhealthpassport/
• A very good comprehensive website with multiple resources
• Includes an excellent interactive health passport tool which the youth and physician prepare together
• Comprehensive site developed by North Carolina Division of Public Health, Children and Youth Branch
• Has many downloadable resources and toolkits for health care providers, youth with special health care needs, and families
• Includes UNC Chapel Hill self and provider assessment tools for transition preparedness
• Variety of educational tools on transition for health care professionals, patients and families
• Includes a training guide on transition and helpful guidelines for parents on raising children with special health care needs
• The “Transition Planning for Youth with Special Needs: A Community Support Guide” was developed to provide community partners (school personnel, social workers, and community members) with useful information and practical tips for supporting successful transition planning for youth with special needs.
http://www.medicalhomeinfo.org/downloads/pdfs/FactsheetTransitioningAdolescents-McManus.pdf - published October 2008
• Data from the 2008 American Academy of Pediatrics (AAP) Periodic Survey of Fellows
• Discusses barriers to transition, identifying economic and non-economic factors
• Presents options for improving pediatric practice training, financing of transition services, adult physician availability, and consumer and parent education.
• This is the validated “Transition readiness assessment questionnaire (TRAQ) 3.0” from Sawicki et al (2011)
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