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AST Message on OPTN Modernization Initiative - April 2025

As the AST continues to advocate for a modernized and patient-focused organ transplant system, we remain deeply engaged with policymakers, federal agencies, and our community of stakeholders. Recent efforts have expressed growing concerns about the OPTN modernization process and the broader healthcare policy landscape. We know this issue is on many of your minds, and we want to keep you informed of the latest developments and how the AST is taking action.

AST Responds to Ongoing OPTN Developments

Following the resignations of several OPTN patient and family board representatives, the AST issued a statement to membership expressing concern over the handling of these developments and ongoing transparency issues in the modernization process.

The AST also sent a formal letter to HHS Secretary Robert F. Kennedy, Jr. and HRSA Administrator Tom Engels, urging greater transparency and stakeholder engagement in the federal transplant oversight structure and HHS/HRSA reorganization plans.

GAO Requests Further OPTN Expertise

The U.S. Government Accountability Office (GAO) reached out to the AST again for input on OPTN modernization and transplant policy. The Society responded to a new set of questions related to patient care and oversight issues, building on our previous contributions around immunosuppression coverage and governance recommendations.
 

Capitol Hill Fly-In Planned for May 14–15

The AST is finalizing plans for its 2025 Capitol Hill fly-in, where AST leaders and transplant patients will meet directly with members of Congress and staff. This event will spotlight critical policy issues, including OPTN Modernization, emphasizing the need for policies that strengthen the transplant system and improve patient outcomes.

Ongoing Engagement with Stakeholders

The AST continues to meet regularly with both professional and patient advocacy organizations to align efforts and advance shared goals. Our community's collaboration remains central to ensuring the success and integrity of this critical transformation.

As always, we welcome your input and questions as this work moves forward. Thank you for your continued support and commitment to the future of transplantation.
 

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This content was developed independently by AST and supported by a financial contribution from Sanofi