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Caregiver Toolkit

The Caregiver Toolkit was designed for people who care for organ transplant recipients or living donors before, during, and after transplant. It is intended to supplement the general information you may have received from your transplant center.

The Toolkit offers a comprehensive overview of transplant caregiving. It covers essential topics for caregivers, such as their responsibilities, legal and financial considerations, self-care and quality of life, and organ-specific information.

We invite you to read the areas of interest to you. Your transplant team can help answer any questions and may print specific chapters that are relevant to you.

Explore the Toolkit

Roles and Responsibilities

Check out these essential topics for caregivers, beginning with their responsibilities before, during, and after the transplant surgery.

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Legal and Financial Considerations

There are many legal and financial considerations when becoming a caregiver. Check out these important topics.

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Caregiver Quality of Life and Self-Care

Being a caregiver is also very difficult. You must take care of the patient’s health and your own health.

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Special Considerations with Caregiving

This chapter explores crucial topics that caregivers must address, from understanding cultural, spiritual, and religious factors to balancing work responsibilities.

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Relationship Dynamics between Patients and Caregivers

This chapter explores the complexities of caring for a loved one.

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Organ-Specific Caregiving

Learn more about caring for a recipient or candidate specific to your patient.

View Chapters

This toolkit was developed by transplant professionals led by the Psychosocial and Ethics Community of Practice (PSECOP) and approved by the American Society of Transplantation.

AST Caregiver Toolkit Authors and Editors:

Heather Bruschwein, PsyD, Co-Chair of PSECOP Caregiver Toolkit Workgroup
Gloria Chen, LCSW-S, CCTSW, Co-Chair of PSECOP Caregiver Toolkit Workgroup
Michelle Jesse, PhD, FAST, Co-Chair of PSECOP Caregiver Initiative
Beverly Hansen, LMSW, Co-Chair of PSECOP Caregiver Initiative
Wendy Balliet, PhD
Kelley Canavan, LMSW
Tiffany Coco, LCSW
Jan Hart, LCSW-, CCTSW-MCS
Don Richardson
Adilia Ortega, LCSW
Charlie Thomas, LCSW

The AST Caregiver’s Toolkit is Generously Supported by

NVS
Henry Ford
ISLHT
NATCO 1
NKF
STSW

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This content was developed independently by AST and supported by a financial contribution from Sanofi