Every Kidney Transplant Caregiver should know: “The role of caregiving is a daunting yet liberating task. In being a caregiver for my mother, a kidney transplant recipient, I have learned a plethora of things and gained new insights. Furthermore, I believe there is importance and value in being informed in your loved one’s care throughout dialysis treatment and transplantation. Being informed throughout my mother’s care allowed my family and me to make the best decisions for my mom and our family.”
As a caregiver I wish I would have known: “I do not believe you can ever be fully prepared for caregiving. Depending on the age and health condition of the individual in care, caregiving can look very different for each individual. Although my mother was very self-sufficient, there were aspects of her care that required my immediate attention, time, and devotion. In addition to my total commitment, I had to learn a lot when it came to her disease prognosis, treatment plan, and care.”
The most difficult aspect of being a caregiver: “I believe knowing when to take time for myself was the most difficult aspect of being a caregiver. My mother’s needs were always placed above mine, and she remained my top priority. For example, oftentimes I would maneuver my schedule to ensure my mother was able to make her doctor’s appointments.”
The most rewarding aspect of being a caregiver was: “The most rewarding aspect of caregiving was being able to give back to the person that gave me life. Furthermore, being able to witness my mom’s health and life improve after transplant has been a continually rewarding aspect of caregiving. She is 3 years post-transplant, and her quality of life has improved immensely. I love seeing her re-engage in activities that she was deprived while in need of a kidney. Additionally, being a caregiver for my mom has influenced my decision to pursue a career in health services research.”
I was most surprised as a caregiver by: “Since being a caregiver for my mother, a kidney transplant recipient, she has become my best friend. The bond we have formed has surprised me the most. Prior to my mother’s illness she was just my mom; however, after I took on this role as caregiver, she has become someone I talk to and confide in every day.”
How I would recommend other caregivers prepare and take care of themselves for this experience and take care of themselves: “The role of caregiving is a huge task that should not be taken lightly. As a caregiver, I believe it is important to remember you have support, and you are not alone in your role as a caregiver. My family played a major role in providing care for my mother. We acted as a team, which helped in not allowing one person to become overwhelmed and overworked. One recommendation I would suggest to anyone considering caregiving, would be to discuss openly with friends and family about your loved one’s needs. I believe having the support of my family was immensely important throughout my mother’s transplantation experience.”
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