Early in the transplant process, talk with the patient about how they want to make end-of-life decisions. These conversations are difficult, but you must know the patient’s preferences, so you can advocate for them. Talking early can also reduce stress later in the transplant process.
Decision-making
At the start of the transplant process, the patient must choose a power of attorney, or a person who will make medical decisions for them.
- Help the patient complete all the paperwork for power of attorney.
- Know where to find copies of all documents.
- Talk with the patient about their end-of-life wishes. Be prepared that the transplant might not go well or that the patient might not live long after the transplant.
- Talk with the patient’s family about their wishes.
Palliative care
The patient might want palliative care. Palliative care is:
- Medical care to relieve symptoms and improve quality of life.
- Not just for patients who are dying.
- Not the same as hospice (medical care for people who will probably die within 6 months).
Learn more about palliative care:
- National Hospice and Palliative Care Organization (NHPCO)
- Choosing Wisely
- NIH National Institute on Aging, “What are Palliative Care and Hospice Care?”
- NIH National Institute of Nursing Research Palliative Care Resources
Ask your transplant team about a palliative care consultation.
Coping with loss
Some patients die before or after transplant. Losing a person you love is overwhelming and painful. Remember, there is no right way to grieve.
You might feel grief during the transplant process, even if the patient does not die. You might feel a loss of lifestyle, future plans, or relationships as the patient’s physical health changes.
It’s OK to struggle with grief, and it’s ok to ask for help.
- National Hospice and Palliative Care Organization, “Experiencing Grief”
- People might ask how they can help as you grieve. Here are some ideas from Caring Info.
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