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Financial Considerations for Caregiving

Unfortunately, caregivers do not receive many financial incentives. In the United States, caregivers cannot receive short-term disability or tax breaks.

Sometimes, Medicaid benefits offer paid caregiving. This is different by state. There are some contingencies. For your state please check the Resource section. Some caregivers use paid leave programs or fundraising to help with money.

Paid Leave Programs

The United States does not have a Federal paid leave program. Some states and cities have paid leave programs. Learn more about state paid leave programs in Resources.

Fundraising

Fundraising organizations can help transplant patients and caregivers raise money for caregivers’ expenses. These organizations:

  • Raise money for caregivers’ transportation, parking, lodging, and meals
  • Are non-profit agencies, so donors can usually claim tax deductions
  • Hold the money, so donations do not affect caregivers’ income or eligibility for income-based programs
  • Can also help you with your fundraising activities. See Resources.

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This content was developed independently by AST and supported by a financial contribution from Sanofi