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Resources

Caregiver Responsibilities
Legal and Financial Considerations 
Caregiver Quality of Life
Special Considerations 
Relationship Dynamics 

Organ-specific and Living Donor Resources
Kidney Transplant
Lung Transplant
Liver Transplant
Living Donation

 

Caregiver Responsibilities

  • The United Network for Organ Sharing (UNOS) is a private, non-profit organization that contracts with the federal government to manage policies on how to best use available organs to make sure access to organs is fair. Learn more about the organ transplant process, policies, and how organ transplants are matched with patients:   
  • Several non-profit organizations provide free education, peer support, and more resources to family caregivers in the US:
  • The Transplant Recipients International Organization (TRIO) is a transplant specific non-profit organization that provides transplant specific education and resources:
  • The United Hospital Fund created “Next Step in Care: Family Caregivers and Health Care Professionals Working Together” to help transition from the hospital to home. Find practical advice and easy-to-use guides:
  • Talking to healthcare providers can create stress and anxiety. The National Institute of Health provides videos and written information about communicating clearly with your doctors: 
  • EduMed provides a comprehensive guide with tools, resources, and practical solutions for caregivers:
  • Transplant patients often must be careful when they prepare and handle food. The US Department of Agriculture offers a guide for how to handle food safely: 

Legal and Financial Considerations 

Caregiver Quality of Life

Self-Assessment for Caregiver Burnout, Depression, and Anxiety:

Mental Health Assistance:

Transplant Specific Caregiver Support Group Resources:

Transplant Caregiver Videos:

More Resources:

Advanced Care Planning

Palliative Care

Emergency Preparedness Resources

American Thoracic Society Disaster-Related Resources

Special Considerations with Caregiving
 

Advanced Care Planning

Palliative Care

Emergency Preparedness Resources

Relationship Dynamics 

Kidney Transplants

Lung Transplants

Liver Transplants

Living Donation

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This content was developed independently by AST and supported by a financial contribution from Sanofi