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When a Patient Does Not Accept Care

A patient might not want to accept care because they: 

  • Don’t want to bother their caregiver
  • Are not used to receiving help
  • Don’t realize the transplant process requires so much help
  • Feel weak if they ask for help

During evaluation, the transplant team wants to see that the patient can accept care and:

  • Understand the transplant process involves both the patient and caregiver
  • Has enough support to get through the process
  • Can take their medications regularly. (Patients who don’t take medicine correctly are more likely to experience organ rejection)
  • Will follow recommendations of medical providers

A patient who can’t accept care might not be approved for the transplant waitlist.

Help your patient accept care before and after transplant: 

  • Be patient, gentle, and empathetic
  • Try to understand why they don’t want to accept care. Ask open-ended questions like:
    • “What are your concerns?” 
    • “What do you think other people will think of you if you accept this care?”
    • “How would you like to be supported?” 
  • Actively listen to the patient without interrupting
  • Don’t tell the patient they are overreacting or shouldn’t feel that way (They might stop saying how they feel or resist care even more) 
  • Start small. Help with small tasks and slowly increase how much care you offer. This might comfort patients who worry about losing their independence.
  • Talk with the patient about why accepting care is important. Remind them they have a better chance of being on the transplant waitlist. (Be patient – do not try to scare them.)
  • Ask the transplant team for help talking with the patient. 
  • Encourage the patient to talk with a counselor, social worker, or psychologist. This might help if the patient is refusing care because they are anxious or depressed. 

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This content was developed independently by AST and supported by a financial contribution from Sanofi