A patient might not want to accept care because they:
- Don’t want to bother their caregiver
- Are not used to receiving help
- Don’t realize the transplant process requires so much help
- Feel weak if they ask for help
During evaluation, the transplant team wants to see that the patient can accept care and:
- Understand the transplant process involves both the patient and caregiver
- Has enough support to get through the process
- Can take their medications regularly. (Patients who don’t take medicine correctly are more likely to experience organ rejection)
- Will follow recommendations of medical providers
A patient who can’t accept care might not be approved for the transplant waitlist.
Help your patient accept care before and after transplant:
- Be patient, gentle, and empathetic
- Try to understand why they don’t want to accept care. Ask open-ended questions like:
- “What are your concerns?”
- “What do you think other people will think of you if you accept this care?”
- “How would you like to be supported?”
- Actively listen to the patient without interrupting
- Don’t tell the patient they are overreacting or shouldn’t feel that way (They might stop saying how they feel or resist care even more)
- Start small. Help with small tasks and slowly increase how much care you offer. This might comfort patients who worry about losing their independence.
- Talk with the patient about why accepting care is important. Remind them they have a better chance of being on the transplant waitlist. (Be patient – do not try to scare them.)
- Ask the transplant team for help talking with the patient.
- Encourage the patient to talk with a counselor, social worker, or psychologist. This might help if the patient is refusing care because they are anxious or depressed.