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International Transplant Data Dashboard

Data Collection in the Field of Organ Donation and Transplantation

International Transplant Data Dashboard

This dashboard provides an overview of websites with links to national and multinational data registries around organ donation and transplantation. Some registries are country-specific, others focus on data for individual organs or specific projects. Most of these websites provide access to regular, typically annual, reports. Others provide aggregated data for download. Obviously, none of the data collections listed offer direct access to individual donor or recipient data. Data requests that go beyond the common aggregated level must therefore be addressed directly to the data providers.

Access Dashboard

The Dashboard allows sorting and filtering based on the different columns:

 

 Column heading in tableDescription
Geographic areaSelection listAfrica, Asia, Europe, North America, Oceania, South America, Worldwide
Organization/InstitutionName of data-provider
LocationCountry of data provider                 
only completed for national registry / activity report
TypeSelection listnational registry / activity report, multinational registry / data consolidation, currently no data available
Name

Name of the registry

as a registry sometimes is known independently of its provider

Link 
CommentIndicates, for example, member states of a multinational registry or, if the last data entry is older than 2 years
Open accessIndicates, what type of data are publicly available via open access
LanguageLanguage used
English availableSelection list: yes / no

Annual

Quarterly

Monthly

Weekly

Intervals of data provision

Historical data  

Current data

Time reference of provided data
Waiting list dataScope of provided data with regard to waiting list and organ donation activities
Data on deceased donation
Data on living donation

Kidney

Liver

Heart

Lung

Pancreas

Small Bowel

Scope of provided data with regard to organs

Data at regional level

Data at TxC/donor hospital level

Scope of provided data with regard to the geographic focus

This dashboard will be regularly revised and updated. Please forward any comments, suggestions, and additions to Olivia Snow (osnow@myast.org). 

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This content was developed independently by AST and supported by a financial contribution from Sanofi