Data Collection in the Field of Organ Donation and Transplantation
This dashboard provides an overview of websites with links to national and multinational data registries around organ donation and transplantation. Some registries are country-specific, others focus on data for individual organs or specific projects. Most of these websites provide access to regular, typically annual, reports. Others provide aggregated data for download. Obviously, none of the data collections listed offer direct access to individual donor or recipient data. Data requests that go beyond the common aggregated level must therefore be addressed directly to the data providers.
Access DashboardThe Dashboard allows sorting and filtering based on the different columns:
Column heading in table | Description |
Geographic area | Selection list: Africa, Asia, Europe, North America, Oceania, South America, Worldwide |
Organization/Institution | Name of data-provider |
Location | Country of data provider only completed for national registry / activity report |
Type | Selection list: national registry / activity report, multinational registry / data consolidation, currently no data available |
Name | Name of the registry as a registry sometimes is known independently of its provider |
Link | |
Comment | Indicates, for example, member states of a multinational registry or, if the last data entry is older than 2 years |
Open access | Indicates, what type of data are publicly available via open access |
Language | Language used |
English available | Selection list: yes / no |
Annual Quarterly Monthly Weekly | Intervals of data provision |
Historical data Current data | Time reference of provided data |
Waiting list data | Scope of provided data with regard to waiting list and organ donation activities |
Data on deceased donation | |
Data on living donation | |
Kidney Liver Heart Lung Pancreas Small Bowel | Scope of provided data with regard to organs |
Data at regional level Data at TxC/donor hospital level | Scope of provided data with regard to the geographic focus |
This dashboard will be regularly revised and updated. Please forward any comments, suggestions, and additions to Olivia Snow (osnow@myast.org).