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Got Meds? Let’s Talk Pharmacies, Refills, and You!

As you take on more responsibility for your transplant health and daily medications, learning how to handle pharmacy visits and refills is a big step toward independence. Here’s what you need to know to make the process easy and stress‑free.

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Know Your Pharmacy

It’s important to know which pharmacy you use and where it is, so if you’re not sure, check your prescription bottle or ask your family.  The pharmacy’s name, number, and address are on the label. Save that info in your Contacts so it’s always handy,  and pay attention during pick‑ups with your family  so you get the hang of how it works. When you feel ready, try checking in at the counter yourself.  The pharmacy tech usually just asks for your name and birthdate. Make sure you’re prepared for any copays, too.  Ask your caregiver what they usually cost or call the pharmacy ahead of time to find out. 

Tips to stay prepared:

  • Save the pharmacy’s phone number and address in your Contacts.
  • Pay attention during pick‑ups with your caregiver—watch what they need to do when they get your medications.
  • When you feel ready, check in at the counter yourself. You'll usually just be asked for:
    • Your name
    • Your birthdate
  • Be prepared for any copays you may need to pay when picking up your medications. Ask your caregiver about what the cost has been.  You can also call the pharmacy to find out if you have a copay. 

Specialty Pharmacies

Sometimes transplant medications—especially anti‑rejection meds—are filled at specialty pharmacies instead of a local retail pharmacy. This is usually because of insurance plans. Here’s what that means for you:

  • If you use a specialty pharmacy, be sure you know which of your medications need to be ordered from that pharmacy.
  • Refills are usually ordered by phone or online.
  • These meds are shipped to your home, so it’s really important to order early—shipping delays happen!

Insurance and Payment

You’ll need to have access to your insurance information. Here’s how to make sure you’re always covered:

  • Keep a copy of your insurance card in your wallet, purse, or backpack.
  • Take a photo of the card and save it on your phone.
  • If you’re unsure about how much your meds will cost, you can always call the pharmacy ahead of time and ask.
    • If the cost or copay of a medication is a problem, contact someone who can help or advise you on how to get that medication. Your pharmacist, transplant coordinator, and social worker can help you work through these issues.
    • You should never skip or just “forget” about a medication due to the cost. Your transplant team may be able to find another medication that is similar but less expensive, or will try to find ways to get financial assistance for that medication. Always let your team know if you are having problems getting your medications!

Managing Your Refills

You should request a refill when you have about one week of medication left. Once you’ve set up your weekly pillbox, it becomes much easier to see when you’re running low and when it’s time to order more. It also helps to check the prescription label so you know how many refills you still have. If the label says “0 refills,” you’ll need to contact your transplant coordinator to get a new prescription before the pharmacy can fill it again. Make sure you also know whether your prescription is a 30‑day or 90‑day supply, since that will help you predict when you’ll need your next refill. 

Ordering refills early is important because pharmacies sometimes need extra time. They may be waiting for a new prescription from your transplant team, dealing with a temporary medication shortage, or transferring your prescription from another pharmacy. Choose a refill method that fits your routine— a phone call, pharmacy app, or automatic reminders.  This will make the whole process easier and help you avoid running out of your medications. 

Feeling comfortable going to your pharmacy and ordering refills on time is part of taking charge of your transplant health.  Refill your meds before you run out by using your pharmacy’s app, auto-refill reminders, or website, or by calling or stopping by the pharmacy.  

Staying organized = no missed doses  → staying healthy!

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This content was developed independently by AST and supported by a financial contribution from Sanofi