Patient Information

Live Donor Toolkit

The shortfall between the demand and availability of organs for transplantation has never been greater. As of February 20, 2018, there were almost 115,000 candidates awaiting transplantation. Last year, the United States performed 34,770 transplants- which would address just over a quarter of the number of individuals currently waiting for an organ.  These transplants were completed due to the gift of life from 16,471 organ donors in 2017, including 10,286 deceased donors and 6,185 living donors. While the numbers organ donors were the highest ever, there is still a critical shortage of organs for those in need.

Medical and psychosocial outcomes for live donors are generally quite good, and a reassuring 97.5% of live organ donors say they would donate again if they could. Living donation is a profound way to help a loved one—or even a stranger-- in need. That said, individuals considering living donation must consider the potential medical, psychosocial, and financial impacts associated with donating an organ—and the transplant community currently lacks a centralized forum to provide education about live donation.

The AST's Live Donor Community of Practice (LDCOP), with the support of eleven other organizations, convened a Best Practices in Live Donation Consensus Conference in 2014, composed of a diverse group of transplant professionals, people with ESRD, and live donors. A high priority recommendation stemming from this meeting—achieving consensus amongst participants—was the creation of a centralized, neutral, high-quality live donor educational toolkit for those considering live donation. This resource is meant to: (1) improve the availability and delivery of quality education for those already considering live donation; (2), broaden live donation messaging to reach others, who might consider live donation if they knew more about it; and (3) reduce ‘recreating the wheel’ in educational content development across transplant centers. 

Following the consensus conference, and with strong support from the AST Board of Directors, an engaged group of 26 transplant expert LDCOP volunteers got to work building a series of pull-out educational chapters aimed at patients and professionals. These are housed under two umbrellas: the Live Donor Financial Toolkit and the Live Donor Medical Impact Toolkit, each with 10-15 stand-alone chapters. The Medical Impact Toolkit includes chapters written at the provider level (for primary care physicians and community nephrologists) and at the patient level.   

The toolkit may be accessed by clicking the button, below. Medical provider resources are included in the toolkit site, and may also be viewed directly using the quick links provided below.

 

View the Live Donor Toolkit

Live Kidney Donor Medical Toolkit for Medical Providers:

Section 1 - Hypertension in the Living Donor

Section 2 - Donors with Stones

Section 3 - The Obese Kidney Donor

Section 4 - Living Donors with Metabolic Syndrome

Section 5 - Living Donors with Pre-diabetes

Section 6 - Living Donors with Microscopic Hematuria

Section 7 - The Living Donor Who is at Risk for PKD

Section 8 - Donor Surgery - Post-op Complications

Section 9 -  What is the ESRD Risk for Living Donors

Section 10 - Psychosocial Risks of Living Kidney Donation

Section 11 - Pregnancy Outcomes after Live Kidney Donation

Section 12 - Non-Directed Living Kidney Donors

Section 13 - Living Donation in Paired Exchange: How is it different from traditional donation?

Section 14 - Live Donor Informed Consent Process - Regulatory Guidelines, Challenges, and Considerations in Protecting Donor Voluntariness

Section 15 - The Primary Care Provider and the Kidney Donor


Live Kidney Donor Medical Toolkit Authors and Editors:
Dianne LaPointe Rudow, ANP-BC, DNP, CCTC (Mount Sinai Medical Center) (Project Developer)
Rebecca Hays, APSW (University of Wisconsin) (Project Developer)
David Serur, MD (New York Presbyterian Hospital-Weill Cornell) (Toolkit Co-Chair)
Kathy Schwab, RN, BSN, CCTC (Mayo Clinic) (Toolkit Co-Chair)
Kimberly Ainsley, LCSW (Ohio State)
Marian Charlton, SRN, RN (New York Presbyterian Hospital)
Mary Amadnda Dew, PH.D. (University of Pittsburgh)
Rich Formica, MD (Yale University)
Elisa Gordon, PH.D., MPH (Northwestern University)
Choli Hartono, MD (New York Presbyterian Hospital-Weill Cornell)
Krista Lentine, MD (Saint Louis University Medical Center)
Didier A. Mandelbrot, MD (UW Health)
Kenneth Newell, MD (Emory University)
Dana Parker, LCSW (U of Colorado)
Todd Pesavento, MD (Ohio State University)
James Rodrigue, PH.D. (Beth Israel)
Dorry Segev, MD (Johns Hopkins)
Sandra Taler, MD (Mayo Clinic)
Jane Tan, MD, PH.D. (Stanford University Medical Center)
Roxanne Tayolor, RN, MSN (Maine Transplant Program)
Erica Thomas, RN (MT. Sinai)
Margaret Vandrovec, LICSW, MSW (Mayo Clinic)
Rebecca Wallschlaeger, RD (U Wisconsin)
E. Steve Woodle, MD (U OF Cincinnati)